The day that I got my first big call from my transplant coordinator, I remember where I was standing. As soon as she started to speak, I felt sick and started sweating, my heart was racing, and I was pacing the room as I went quickly through the questions they would ask on every call to make sure I was the right patient. As soon as she said there was a match, I sat down and felt a huge sense of relief and excitement flow over me.

A quick note about The Courage to Become Series and today’s, featured woman.

Hi! Catia here. I am delighted to bring you Season 4 of The Courage to Become! I ask women I admire to share a behind the scenes view of their becoming. We often see the result but aren’t privy to the through, to the transformation. And the through is where all the magic happens. The story you are about to read will buoy you with hope. Being a woman is not easy, but damn, if it can be magical. There are inspirational women everywhere, and Lindsay is one of them.

Enjoy her story of becoming. I have never met Linsday in person, but I feel like she’s my friend! Her sister, Courtney, and I used to write together for Austin Moms Blog, and as I got to know Courtney better, I had the pleasure of crossing digital paths with Linsday. Her story brought me chills and tears. Women have phenomenal capacity. - Please welcome, Lindsay

Lindsay Gath

When Catia reached out about sharing my story in her Courage to Become series, I was honored that she thought of me. I wanted to share the most significant part of my life: I’ve received the gift of life through a living donor kidney transplant, but I also wanted to share my back story and what led to where I’m now.

When I was 11 years old (in 1992), I became extremely sick. For months I had been waking up with swollen ankles and puffy eyes, but I had felt normal up until then. After a doctor’s visit, we were sent on to different specialists to figure out what was wrong, because some of my blood work looked alarming. I eventually had a kidney biopsy that diagnosed me as having something called Membranoproliferative Glomerulonephritis (MPGN Type 1). I thought I was cool for knowing how to spell encyclopedia in the 3rd grade, but this took me to another level. We found out it was caused by Strep throat at some point, which I used to get frequently as a kid. I was treated and seen routinely to keep things under control, but I went throughout my childhood trying to ignore my chronic kidney disease and pretend I was no different from the other kids. It was just not something I wanted to focus on, but it could not be ignored a few times throughout my life. When I met my husband, he was aware of the “situation.” When we decided to try and have kids, I had to be monitored extremely closely. I delivered a few days after my due date with my son, but the second time around was slightly different. My kidneys were not fairing as well, and they ended up putting me on modified bed rest for a few days and then admitted me to the hospital for a few rounds of steroid injections to help improve the baby’s lung growth before delivery. Our daughter was delivered seven weeks early in December of 2007. Even though leaving her in the hospital as we headed home was one of the hardest things we’ve done, she was a tough little cookie and only spent 9 days in the NICU, which was much shorter than they anticipated. Over time my kidneys calmed down a bit, and life returned to “normal” with my regular nephrology check-ups and medications.

Fast forward to late 2016, when at one of my regular nephrology check-ups, I was told that my kidney function was around 25%, and I would need to start thinking and talking with family and friends about my future and the possibility of needing a transplant. I honestly was in a bit of shock, mainly because I would normally just attend my regular check-ups and keep moving along, not paying much attention to my kidney function as they always made it seem like I was stable. I have since learned to read my labs on my own like a hawk. When they told me it was time to start thinking of my options such as dialysis and transplant, I felt scared and sad about it, knowing that the possibility of this huge life change was closer than I ever expected. I couldn’t ignore it and pretend as if there was nothing wrong anymore either.

When I put my mind to something, a lot of times without even thinking it all the way through, I just jump in headfirst. It’s a blessing and a curse. This was one of those times, though, that I jumped. I had so much to live for, and I wanted to fight with everything I had in me. I made connections with anyone I could to get the right info I needed to push forward. I ended up finding out that you’re not always referred to a transplant center by your own doctor. You’re often referred straight to dialysis, and you call the transplant center yourself before they work with your doctor to start the process towards transplant, so I did just that. I called up a transplant center myself and started there. I was so nervous when I called them, and it felt bizarre to call up and say, “Hey. I need to get evaluated for a transplant. Can we set that up?” Once the ball was rolling, I was eventually evaluated in early 2017 at the University Transplant Center in San Antonio, TX.

I don’t know why exactly, but it felt like a natural step to let family and friends know through Facebook Live what was going on. Most of the people I had met in adulthood didn’t even know I had a chronic kidney disease because I never really made it a topic. It ended up being more than I expected as friends and family shared my videos, and my transplant center was overwhelmed with people that applied to see if they could be a living donor candidate for me. People that I didn’t even know personally. This still makes me so emotional to think about. I was blown away! I heard from friends that I had not seen or talked to in over 20 years, and friends of friends who lived out of state and had never met me that had applied to try and donate a kidney to me. And honestly, I still don’t even know everyone that did apply because, of course the transplant center couldn’t tell me who they all were. I hated not knowing so that I could properly thank every one of them for trying.

Donor testing started once I was approved for transplant and was made active on the UNOS (United Network of Organ Sharing) list, which would allow me to receive a kidney from a deceased donor. However, with my blood type (O+), I could be looking at anywhere from 5-8 years, because even though I would be a universal donor to all other blood types, I would only be able to receive from another O blood type. Knowing this made me push everywhere and anywhere I could to get closer to transplant with a living donor match. I wanted a preemptive transplant, which meant avoiding dialysis entirely if possible and getting to transplant before that was needed. There’s only a small window of when you can even be evaluated by a transplant facility vs. when you need dialysis to stay alive, and I was heading through that window quickly. Dialysis was a terrifying thought for me. Imagining having to spend so much time away from my family, and the other health complications that can come with it made me frustrated and feel a stronger sense of urgency. Every step forward in the transplant process was a huge accomplishment, but I also felt like I was in a race against time, because as your kidney function declines, it can decline faster and faster towards the end. By the time I was active on the UNOS list, my kidney function had decreased and was now under 20% in total. They usually start testing those that are closest to you and work their way outward with the thinking that those closest to you would be more committed to going through the whole process.

When I got my first big call from my transplant coordinator, I remember where I was standing. As soon as she started to speak, I felt sick and started sweating, my heart was racing, and I was pacing the room as I went quickly through the questions they would ask on every call to make sure I was the right patient. As soon as she said there was a match, I sat down and felt a huge sense of relief and excitement flow over me. The match was my sister. As soon as I got off the phone, I text my husband and said, “I need you to call me.” I knew he would be in meetings, but we also had an understanding that if anything new or serious happened -- well, he knew when it was an urgent matter as we felt we were always on call. I would answer every single ring of my phone just in case. My sister would be sent on through further testing to make sure she would be healthy enough to donate because that is the most important thing to make certain at that point.

Weeks later, our roller coaster took another turn as my husband was leaving work to head home. When he got in his car, my mom was calling him. My sister had found out earlier that day that they had found some kidney stones (of all things) during her donor testing, and even though she hadn’t been affected by them, she was no longer able to donate. There would be a concern that I would then have complications from kidney stones, or that my sister would be left with one kidney and have complications. My mom and sister were struggling with letting me know, so my husband came home to give me the news that we were back to square one. At that moment, I was sad and exhausted, but I also knew that it would all be okay eventually. I was sad that I wasn’t going to share that moment with my sister because she’s the person I’m closest to other than my husband. With this news also came that my brother-in-law (my sister’s husband) had gotten a call right after my sister had hung up with the transplant coordinators about her quandary and was told that he was a match. It didn’t make sense, though, because he wasn’t even the same blood type as me. It ended up being a massive miscommunication on the transplant teams’ part, so the range of emotions that day was honestly enough to drain me for a while. There were a few mishaps, but I do see how it happens. Every person involved is in it for the end goal, for extending life and health, and they care about you deeply.

I knew that my sister’s best friend was also one of the ones that they had tested more recently around this time. I had grown up knowing her, admiring her, and she’s just plain fun to be around. She’s one of the most passionate and well-meaning people I’ve ever met, and she cares about people deeply. At one point during testing, she had called and asked me more about how the paired exchange program worked and how that would help me if she were not a match for me. A paired donation is where one recipient from one pair is compatible with the donor from another pair, and vice versa. The transplant center may arrange for a “swap,” but it can also lead to donation chains where multiple donors and recipients are involved. This is also the Shea Jones that Catia featured in her Courage to Become series in June of this year. The day I got my second call was a weekend in September of 2017. My husband and son were out running some errands with me, and as we were driving, my phone rang, and it was my sister’s best friend, Shea.

I could tell in her voice that something serious was happening. She told me she was my match, and as my heart raced and I took it all in, the tears started to flow. Shea asked me, “You’re crying because this is good, right?” She wondered if October 26th would work, which was literally about a month later. Anytime would have worked for me honestly. I couldn’t believe it. It’s not as easy finding a match as the movies make it look, so the fact that my sister brought this person into our life could not have been more perfect. Shea and I called my sister on a 3-way call and told her right away, together. We were now in this as one unit, and it just felt right.

About two weeks before I had gotten that call from Shea, I had the most real dream I had ever woken up from wherein I had found out that Shea was my match. I had told my husband and kids about it and had even text my family about it. On the morning of October 26th, 2017, that dream came true. From the day I initially contacted the transplant center until the day of surgery, almost exactly a year had gone by. The night before transplant, Shea and I, along with our families, stayed close to the hospital as we had to be up extremely early. We met down in the hotel lobby before the sun was up along with our husbands and my sister before heading to the hospital, where our families joined us later. In pre-op, they had us separated until I asked if we could be together, and Shea said yes. I just needed her close by. It didn’t feel right any other way. Was I afraid of what was about to happen? Yes. But, I also had no other choice at that point. My kidney function was down to a total of 12% on the morning of transplant. They prepped us both, and I was doing good until they rolled Shea away and started her operation before taking me back. I was overcome with emotion and worried about Shea, and the reality of it all hit me. One of the nurses came over and hugged me tightly. When they rolled me back before I was put to sleep, I asked my doctor if Shea was doing okay, and he said she was. He told me she was right next door, and that if I looked up at the monitor above me, I could see her on the operating table. It was the last thing I remembered before they got me to sleep. During our concurrent surgeries, our husbands were updated by text as to how everything was going. When they hooked up Shea’s kidney inside me, he was told that the kidney started working immediately, which was fantastic news.

I woke up quickly after surgery and felt different already. It was amazing. Because I had been “sick” for so long, I felt this instant relief to my body. The air around me felt cleaner, and I just felt good. Shea and I were in different rooms, me in ICU, but we were on the same hospital floor. We FaceTimed and talked for a bit, and my husband caught the whole thing on video, which is quite funny to look back at now. We were both pretty doped up still, and our families were in our rooms, which felt like one big party. At one point, Shea’s nurse had come into the room, and I met her through FaceTime, and Shea asked how soon we could see each other. The nurse told us probably the next day, but if you know both Shea and me, that was not the answer we were willing to accept. Shea convinced one of her nurses late that night if she could be wheeled to my room, and we got to see each other that day.

The next day I was moved out of my ICU room, closer to her, and we were able to walk the halls together soon after. My lab numbers, especially kidney function, improved hourly it seemed, and we were thankful to head home just a few days later. To say the journey of transplant has been easy though, is not the full truth. It is rewarding and happy most of the time, but there have also been challenges. I went through acute rejection three short weeks after transplant, where I had to be admitted for some heavy-duty IV meds that thankfully stopped it from harming my new little kidney. I have had three kidney biopsies on the new kidney, too much lab work to count, medication changes and adjustments. I am on antirejection medications that suppress my immune system for the rest of my life. The energy that I now have and the deeper appreciation I have for, the smaller things in life are worth it! And I love carrying a piece of Shea with me forever. Seeing my scar reminds me daily of our connection.

One of the challenges I bring upon myself is that I often feel like I’m not doing enough to fully live with this extension on life that I’ve been given. I feel the need to push myself farther intentionally. I’m currently taking college classes full time right now, working on getting my bachelor's in Health Sciences from West Texas A&M and ultimately certification as a Child Life Specialist. This will allow me to walk alongside kids and their families in the medical journey they are on and advocate for them when they are in a tough space. I know exactly what it’s like to be there as a kid. In the meantime, I’ve had many connections open to me because of my experiences, which I love. I was able to help organize the National Kidney Foundation Walk in Austin in 2017. I have been able to use my voice in the kidney community because of another connection that I made after being asked to join as a Field Ambassador for the state of Texas through the oldest and largest, independent kidney patient organization in the U.S. – AAKP (American Association of Kidney Patients). I hope to become even more involved with them over time as they are an excellent resource for any patient (or family member) who has chronic kidney disease, is on dialysis, or is a transplant recipient. Meeting so many people in the kidney community and hearing all of their different stories has shown me that we all have perseverance when we need it. You may think it’s not there, but you can find it when you’re dealt with hard things. My hope in sharing the journey I’m living is that it reaches someone who needs it most. Organ donation is a very powerful thing, and I will be forever grateful for this life I’ve been given because of it.

If anyone would like to sign up to make that gift of life happen for another when they’re gone, they can go to www.registerme.org but also let their families know their wishes.

No need to take those organs with you if they can help someone in need.

Great resources for kidney patients: www.aakp.org

You can connect with Lindsay on her Instagram or Facebook Page.

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Hi friend!

Welcome to Bright Light.

I'm Catia, a woman, wife, mama, sister, friend, daughter -- you know -- I wear a million hats just like you.

Here at Bright Light, I help parents worldwide enjoy their lives and enjoy their kids.

Family life can be beautiful, but it's not easy. A day in a family can be filled with heartache, guilt, hugs, crying, laughing, and rushing from one place to another.

I help parents create the home life they've always wanted and an environment that feels good for everyone. I teach parents how to strengthen their marriages and relationships with their children.

I believe in the power of parents and families to support and encourage each family member and then take that energy and make the world a better place.

You have the strength to break behavioral patterns, heal intergenerational trauma, and nurture your family in the way you have always wanted to.

To each session, I bring my training as a Certified Conscious Coach, my graduate studies in Marriage and Family Therapy, and my decade-long career as an author and keynote speaker. My approach is multi-cultural, grounded in research and my own experience as the mama of two young girls.

If I could choose ten words that best describe me, I would say: honest, welcoming, giving, curious, loving, earnest, empathetic, spiritual, playful, and sassy. Let's add: adventurous. That's 11.

Nice to meet you!

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